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VOICED: A 2-year old girl with a rare blood disorder could have funding for her treatment cut. Health chiefs are deciding whether the NHS can afford the effective but expensive drug that's helping Indie Smith stay active. In October 2011, two weeks before her first birthday Indie was diagnosed with `Atypical Haemolytic-Uraemic Syndrome (A-HUS)an incurable life threatening disorder that is very rare. Indie had been ill for several weeks before diagnosis, suffering with diarrhoea and sickness, and was very dehydrated. Frazer Maude reports NHS Drug Plea for Child with Blood Disorder on March 30, 2013 in Chelmsford, England (Footage by Sky News/Getty Images)